This online event is for anyone interested in the collaborative efforts to advance rare disease knowledge and enhance global strategies for patient engagement.
Charlene Son Rigby, Daria Julkowska and Heidi Rehm will discuss efforts to advance rare disease knowledge and enhance global strategies for patient engagement. They will share their perspectives on driving innovation, fostering collaboration, and empowering patient communities in the rare disease space.
Attendees will also learn about the work of the GA4GH Rare Disease Community of Interest, ways that they can get involved and how the community intersects with the needs of international rare disease initiatives.
For more information on this event, including how to register, please visit its webpage or contact the event’s hosts, GA4GH Rare Disease Community of Interest.
